Champion Changemakers: Rare Disease

This Rare Disease Day (28 Feb 2022), join women from three countries creating change in the world of Rare Disease as they share their lived experience. From a double heart and lung transplant in a different country during COVID-19 to spending 9 years in search of a diagnosis to explain intermittent full-body paralysis - these gripping stories are more rare than the diagnosis itself.

The event will be hosted by Champion Health Agency founder, Anja Christoffersen, who lives with a rare disease herself - VACTERL Association - a condition from birth that deformed most of her internal body systems.

Beginning at 5:30pm AEST / 6:30pm AEDT over Zoom (online), you will hear from:

• Mele Tau'ese - Eisenmenger Syndrome - Auckland, New Zealand

• Libby Lake - Ocular Albinism - Melbourne, Victoria, Australia

• Liz Hile - Bilary Atresia - Toowoomba, Queensland, Australia